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Lucy's Story

Lucy with her pet catNine-year-old Lucy was born with Ocular Albinism, which means her eyes lack melanin pigments and allow in too much light. It is hard for her to see details clearly. However, this is no obstacle for Lucy. She is a bright and studious little girl who loves to write stories and read. Lucy is passionate about the environment, her pet cats and her dog - and she loves dragons!

Lucy's condition was diagnosed aft er her mum, Eileen, noticed that Lucy couldn't focus properly and had pronounced Nystagmus - rapid, involuntary back-and-forth eye movements. Although there is no cure for this condition, fortunately Lucy's vision is stable and will not deteriorate with age. The low vision skills she is now learning will greatly benefit Lucy as she grows older.

About three years ago, an instructor from Guide Dogs NSW/ACT visited Lucy's school and showed them how to make the school grounds easier for her to navigate. Lucy has been training with an Orientation and Mobility Instructor for the past year and a half, and has learned to use a long cane and cross the road safely. She also uses a magnifier to read.