One in four people wait more than 10 years before requesting assistance
People with vision loss are increasing their risk of trips, falls, isolation and depression, with a Guide Dogs Australia survey revealing that 50 per cent of respondents waited more than two years between diagnosis and seeking assistance from the organisation.
A staggering 26 per cent waited more than 10 years before contacting Guide Dogs NSW/ACT for help.
To address this finding, Guide Dogs Australia member organisations are launching a new national campaign, Don’t Delay, Seek Help Today, this International White Cane Day on October 15, encouraging people who are experiencing issues with their vision to seek support sooner rather than later.
A new video and brochure outlining the range of services offered by Guide Dogs NSW/ACT will be launched as part of the campaign to help people better understand how the organisation can support them through their vision loss journey.
“Vision loss in those aged over 40 increases the risk of falls by two times, the risk of depression by three times and the risk of hip fractures from four to eight times , so it is important people contact us to find out about the services we offer at no cost to reduce their risk,” CEO of Guide Dogs NSW/ACT, Dr Graeme White said.
“The survey revealed a range of reasons why people wait including not realising their vision was limiting their mobility until an incident occurred such as a fall, relying on family members to get around and a lack of understanding that a person doesn’t have to be totally blind to receive help,” he said.
“Every day, 28 Australians are diagnosed with uncorrectable vision loss, including nine who become blind, so it is important we reach out to ensure those who are experiencing problems with their sight maintain their independence to live the life they choose.”
Concerns about the stigma associated with using a white cane and denial that a person was losing their vision, were two psychological barriers outlined in the survey findings.
Coral tells her story
Legally blind since a young child due to a case of meningitis, Coral Arnold’s story is an illustration of what can happen as a result of these perceptions, and a need to break them down.
Provided with an identification cane to signal to the public she was vision impaired when she was 16, Coral did not request mobility training in how to move around safely, but this was not her only barrier. “Even with the ID cane people used to say to me, ‘put that away and be normal.’ They’d worry about the stigma attached to having a cane, and they didn’t want others to treat me differently,” she said.
It wasn’t until her fifth child left home that Coral sought the support she needed from Guide Dogs NSW/ACT to learn how to use a long cane. “When my children left home and became independent, I thought it was about time I should too.”
“Having a cane gave me back the confidence and independence I lost staying at home,” she said. A mobility specialist from Guide Dogs NSW/ACT has spent many hours training with Coral. “My main aim was to visit the Ensemble Theatre, Opera House and cinema, so the instructor taught me the correct techniques to use my cane and how to navigate from my home by using public transport and the route to walk from the station,” Coral said. “We walked there together a number of times before I was confident to do it by myself.”
“The instructor also taught me how to use the Guide Dogs NSW/ACT GPS app on my phone, so I can locate where I am at any time without assistance from other people,” she said.
Why people wait to seek help
By the stage Coral came to Guide Dogs NSW/ACT she had come to terms with her vision loss – something which can take some time according to Guide Dogs NSW/ACT Psychologist, Dr Desirée Gallimore. For survey respondents who waited more than 10 years to seek help, working their way through this process was the main reason they resisted support.
“If the vision loss is acquired because of disease or an accident, when first diagnosed or the sudden vision loss is experienced, the person experiences shock and grief,” Dr Gallimore said. “When it becomes clear that there is no treatment or ‘cure’ for their vision impairment, then a person might experience great sadness, sometimes depression, and often loneliness. After some time, the person begins to have more clarity of thought and begins to consider the practical problems that this presents to them. They begin to think about how they are going to reconstruct their life.”
It is at this point that assistance from Guide Dogs can mean a world of difference. “While training Guide Dogs is an important part of our work, our most common program is showing people with vision impairment how to safely move through different environments, using a range of mobility aids such as the long cane and electronic devices,” Dr White said.
“Each year our highly trained specialists work with people of all ages to help them achieve their mobility goals. Programs are tailored to meet the lifestyle needs of each individual, and most training is delivered locally, in the person’s home, community, school or work environment, at no cost,” he said.
This is something Coral has experienced first-hand as she now travels independently with her long cane and GPS app on her phone. The 70 year old has some advice for those who are experiencing problems with their sight: “Don’t wait till your sight gets too bad because you’ll lose your confidence. If you wait to get help, you’ll continue feeling insecure when you go out on your own and, like me, this might stop you going out altogether,” she said. “My kids now joke that I go out more than them.”
For more information about the services offered by Guide Dogs NSW/ACT visit the new-look website at www.guidedogs.com.au. Alternatively call 9414 9300 to arrange a time for a specialist to visit you to speak about your needs along with answer questions you might have about the National Disability Insurance Scheme (NDIS).
What is International White Cane Day?
International White Cane Day is held on October 15 each year to raise awareness of the importance of the white cane and how it can aid mobility and independence for a person with vision loss. This year marks 95 years since the white cane was invented by an Englishman who lost his sight in an accident and painted his black cane white to make it more visible to others.